Protecting genetic privacy in biobanking through data protection law / Dara Hallinan.

9780191918919 (ebook) :

First edition.

Oxford : Oxford University Press, 2021.

1 online resource (304 pages).

Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.

Print version :

Books / Online

English

June 10, 2021

Oxford scholarship online.

Includes bibliographical references and index.

Specialized.