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The governance of genetic information : who decides?
Title
The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.
ISBN
9780521509916 (hardback : alk. paper)
0521509912 (hardback : alk. paper)
Published
Cambridge, UK ; New York : Cambridge University Press, 2009.
Physical Description
xi, 235 pages ; 24 cm.
Format
Books
Language
English
Added to Catalog
November 06, 2009
Bibliography
Includes bibliographical references and index.
Contents
The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson
Me, myself, I : against narcissism in the governance of genetic information / Søren Holm
Decisions, consent and expectations of the individual / Caroline Mullen
Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows
Rights, responsibility and stewardship : beyond consent / Roger Brownsword
Who decides what? : relational ethics, genetics and well-being / Sarah Wilson
Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie
Genetic information and public opinion / Andrew Edgar
Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
Subjects
Subjects (Medical)
Genetic Privacy - ethics.
Decision Making - ethics.
Genetic Privacy - legislation & jurisprudence.
Public Policy.
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